25 Year Old Man Trapped In The Body Of A 12 Year Old Due To Rare Disease

August 21, 2018 | No Comments » | Topics: Story

Tomasz Nadolski, from Wroclaw, Poland, suffers from a rare and cruel disease that has not only made his life a living hell, but also left him stuck in the underdeveloped body of a 12-year-old boy.

Mr Nadolski’s problems began when he was seven years old and began vomiting after every meal and started suffering from pains in his stomach, hands and feet.

Because he couldn’t keep any food down, he lost a lot of weight and kids at school started teasing him about looking like a walking skeleton. For years, doctors couldn’t figure out what was wrong with him, and some of them even claimed that his problems were mental rather than physical.

He recalled: “Friends at school would say: ‘Skeletor, you’ve left Auschwitz!'”

“My parents were torn. They saw something going on, but they believed the doctors that I was mentally ill and that I should just eat more,” he said.

It took 16 years for Tomasz’s condition to finally be diagnosed, but, unfortunately, knowing what he was suffering from didn’t make the young man’s life any better.

Tomasz Nadolski was diagnosed with Fabry Disease, a rare and cruel genetic condition caused by the lack of alpha-galactosidase, an enzyme responsible for processing biomolecules known as sphingolipids. These build up in the walls of blood vessels and other organs and cause a number of serious symptoms, including excruciating pain and organ failure. In Tomasz’s case, the disease has also stopped his physical development, leaving him looking like a 12-year-old boy.

“I am 25 years old and I would like to look like a man of my age. I hate this boy who I see every day in the mirror, because it is not me,” the young man recently said, adding that sometimes people refuse to accept his real age, even after showing them his ID card. One time a policeman suspected him of having a fake one.

Mr Nadolski says the condition has affected his relationships with his relatives as they still treat him as a child because of his appearance.

“When I’m at home, I’m just sitting in my room and spending my time alone. I feel lonely and I lack the support of my family and this is how it has been for many years,” he said.

“The disease has destroyed our family relationships.”

There is a treatment for the condition, though it is expensive. Fortunately, the manufacturer has agreed to provide him with the drug for free.

But while he would love to look his age, Tomasz’s unusually youthful looks are not his biggest problem. His genetic condition leaves him unable to eat proper food, so he has to be connected to an IV for up to 20 hours a day in order to get enough nourishment. He also needs painkillers to deal with the incredible pain he feels in most of his body. It prevents him from sleeping soundly and night, and living a normal life during the day, as the simple act of walking can be excruciatingly painful.

Asked if he ever thinks about starting a family in the future, he said:

“No. I have the feeling that I am too mentally damaged, I feel that after all these experiences I would have to undergo deep psychotherapy to be able to create a healthy relationship.”

 



You Might Like